5. Where can my child receive specialist care?
Short answer
This is a difficult question! Where do you live? The services available vary from country to country. If you are not aware of any, start with your local doctor. There may be a national lymphœdema framework in your country, make contact with it if there is, and read on.
Because primary lymphoedema is a rare condition, your child should ideally be assessed in a specialist centre with experience in diagnosing and treating lymphatic diseases.
These centres bring together different healthcare professionals, such as doctors, physiotherapists, nurses and genetic specialists, to provide the best possible care.
Across Europe, many of these centres work together through the VASCERN network, helping families access expert advice and up-to-date treatment.
Because primary lymphoedema is a rare condition, your child should ideally be assessed in a specialist centre with experience in diagnosing and treating lymphatic diseases.
These centres bring together different healthcare professionals, such as doctors, physiotherapists, nurses and genetic specialists, to provide the best possible care.
Across Europe, many of these centres work together through the VASCERN network, helping families access expert advice and up-to-date treatment.