Playlist
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This is the original children’s quality of life survey. Please feel free to complete it. We hope that it will prompt you to think about different aspects of your life, how lymphœdema affects you, and prompt you to consider how you may improve things for yourself.
We hope to be able to publish the final validated version here in due course.
Care of Children with Lymphœdema
Date of Publication: 2010 Author/s: Isabelle Quéré, Christine Moffatt Description: This focus document provides practitioners with an overview of childhood lymphoedema: the causes, presentations, and approaches to management.
Big Book of Lymphoedema
The award-winning children’s book The Big Book of Lymphoedema aims to help children and families understand the condition by presenting useful information in a colourful, eye-catching and child-friendly format. Originally launched in April 2010, the book was written by Dr Jacquelyne Todd, who was a physiotherapist consultant in lymphoedema at The Leeds Teaching Hospitals NHS Trust, before she retired in 2013.
A new edition with subtle updates is available from the Lymphoedeam Support Network (LSN).
Stora boken om Lymfödem
Stora boken om lymfödem är speciellt riktad till barn. Den förklarar på ett lättförståeligt sätt vad lymfödem är och hur det kan behandlas. – SÖF
Författare är Dr Jacquelyne Todd
It's Not Bad: Love and Hugs for Lymphoedema
Written by Jamie Gaddis Stephens (Author), Jessica Gaddis English (Editor) It’s Not Bad dives into what is called, lymphœdema. Primary lymphœdema affects children all around the world but it is a rare condition. This story is geared towards children who struggle with understanding their disease.
Available from the Jo Rising Foundation via Amazon
Super Nan and the Secret Support Network
What happens when children see your lymphœdema for the first time? How do you deal with it? How do they deal with it?
Michelle Freke’s book explores these questions in a child friendly, super-hero type way.
Available from the Lymphoedema Support Network (LSN)
Lymphoedema Colouring Book
A unique educational tool created within VASCERN’s Paediatric and Primary Lymphoedema (PPL) Working Group is reaching a wider audience. The Lymphoedema Colouring Book, designed to help children understand their condition in an engaging and reassuring way, was recently featured at two major international congresses: the Congress of the French Society of Vascular Medicine (SFMV) in Lille and the 12th International Lymphoedema Framework (ILF) Conference in Canada.
Available in ten languages, the book combines friendly illustrations, simple explanations, and a child-adapted version of the Do’s and Don’ts for lymphedema skin care and compression. It is a practical and reassuring tool that helps children learn about compression, skincare, and daily routines in a way that feels safe and approachable.
Lympho Book
A new book shortly to be available from our own Dr Élodie Stasi our exotic, knowledgeable and wonderful Fisioterapista.
Ipsum lorem..
Other useful places to go are: